Stanford Center for
Biomedical Ethics

Publications

SCBE members publish often in leading journals.  SCBE is also home to the editorial office of the American Journal of Bioethics (AJOB).

Cho MK, Magnus M, Constantine M, Lee SSJ, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS.  (in press) Attitudes toward risk and informed consent for research on medical practices: A cross-sectional survey. Annals of Internal Medicine.

Milner LC, Garrison NA, Cho MK, Altman RB, Hudgins L, Galli SJ, Lowe HJ, Schrijver I, Magnus DC. (in press) Genomics in the clinic: ethical and policy challenges in clinical next-generation sequencing programs at early adopter USA institutions. Personalized Medicine.

Kelley M, James C, Alessi S, Korngiebel D, Wijangco I, Rosenthal E, Joffe S, Cho MK, Wilfond BS, Lee SSJ. (in press) Patient perspectives on the learning health system: the importance of trust and shared decision-making. American Journal of Bioethics.

Cho M, Taylor H, McCormick JB, Barnard D, Boyle M, Capron A, Dorfman L, Havard M, Reider, C, Robinson M, Sandler J, Schwartz P, Anderson N, Danis M, Sharp R, Wilfond B. (in press) Building a central repository for research ethics consultation data: A proposal for a standard data collection tool. Clinical and Translational Science.

Sharp RR, Taylor HA, Brinich MA, Boyle MM, Cho M, Coors M, Danis M, Havard M, Magnus D, Wilfond B. (2015) Research ethics consultation: ethical and professional practice challenges and recommendations. Academic Medicine. doi:10.1097/ACM.0000000000000640.

Allyse M, Sayres LC, Goodspeed TA, Michie, MM & Cho MK. (2014) “Don’t want no risk, don’t want no problems.” Public motivations for selecting among prenatal testing options in the United States. AJOB Empirical Bioethics.

Harvey HS, Havard M, Magnus D, Cho MK and Riedel-Kruse I. (2014) Innocent Fun or Microslavery?: Public Responses to and Ethical Analysis of Biotic Games. Hastings Center Report.

Weatherford Darling K, Boyce AM, Cho MK and Sankar P (2014)  “What is the FDA going to think?”: Negotiating Values through Reflective and Strategic Category Work in Microbiome Science.  Science, Technology and Human Values. doi:10.1177/0162243914545405

Ormond, KE and Cho, MK.  (2014) Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues.  Personalized Medicine 11:211-222.

Cho, M.K. (2014). Open-Label Extension Studies: Are They Really Research? The American Journal of Bioethics, 14:4, 60-61, doi: 10.1080/15265161.2014.889958
  

Baltimore, D., Berg, P., Botchan, M., Carroll, D., Charo, R.A., Church, G., Corn, J.E., Daley, G., Doudna, J., Fenner, M., Greely, H., et al. (2015). A prudent path forward for genomic engineering and germline gene modification. Science, 348, 36-38. doi:10.1126/science.aab1028

Greely, H. T. (2015). Genomics, ethical issues in. International Encyclopedia of the Social & Behavioral Sciences (Second Edition), 10, 32-41. doi:10.1016/B978-0-08-097086-8.82011-5

Greely, H.T. (2015). Ethical Issues in Clinical Genetics and Genomics, in Genomic Applications in Pathology. George Netto & Iris Schrjiver, eds. New York: Springer.

Greely. H. T. (2015). Comments on Draft Guidance:  Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs), Submitted by Stanford University Faculty Involved in Genomics Research.

Kulynych, J., & Greely, H. (2014). Every patient a subject. Slate.
http://www.slate.com/articles/technology/future_tense/2014/12/when_personalized_medicine_genomic_research_and_privacy_collide.html

Karkazis, K., & Jordan-Young, R. (2015). Debating a testosterone ‘sex gap.’ Science, 348(6237), 858-860. doi: 10.1126/science.aab1057

Dingel, M., Karkazis, K., & Koenig, B. (2015). Framing Nicotine Addiction as a ‘Disease of the Brain’: Social and Ethical Consequences, reprinted in Expanding Addiction: Critical Essays, Robert Granfield and Craig Reinarman eds. New York, NY: Routledge.

Karkazis, K. (2015). Sex Reassignment. Encyclopedia of Bioethics, 4th edition. Bruce Jennings ed., Macmillan Reference.

Karkazis, K, & Davis, G. (2015). Intersex: Sociocultural Perspectives. In The International Encyclopedia of Human Sexuality. Patricia Whelehan and Anne Bolin eds.. Malden, Oxford: John Wiley and Sons, Ltd. doi 10.1002/9781118896877.wbiehs240

Jordan-Young, R., Sonksen, P., & Karkazis, K. (2014). Sex, health, and athletes. BMJ, April 28 (online), BMJ 2014;348:g2926

Van Cleave, A.C., Roosen-Runge, M.U., Miller, A.B., Milner. L.C., Karkazis, K.A., & Magnus, D.C. (2014). Quality of communication in interpreted versus noninterpreted PICU family meetings. Critical Care Medicine, 42(6):1507-17.

Karkazis, K. (2014). Sex Reassignment. Encyclopedia of Bioethics, 4th edition, Bruce Jennings ed., Macmillan Reference, pp. 2909-2914.

Shim, Janet, Kate Darling, Martine Lappe, Kat Thomson, Sandra Soo-Jin Lee, Robert Hiatt, and Sara Ackerman. (in press) The Prism of Homogeneity-Heterogeneity: Genes, Environment, and Etiologic Complexity in the Post-Genomic Era. Science, Technology and Human Values. 

Cho, Mildred, David Magnus, Melissa Constantine, Sandra Soo-Jin Lee, Maureen Kelley, Stephanie Alessi, Diane Korngiebel, Cyan James, Ellen Kuwana, Thomas H. Gallagher, Douglas Diekema, Alexander M. Capron, Steven Joffe, Benjamin S. Wilfond. (in press) Attitudes toward Risk and Informed Consent for Research on Medical Practices: A Cross-Sectional Survey. The Annals of Internal Medicine.

Lee, Sandra Soo-Jin (in press) The Politics of Excavating Difference from the Human Genome: Biobanking and the Problem of Health Disparities Special Issue: “Race, Racial Inequality, and Biological Determinism in the Genetic and Genomic Era.”  The Annals of the American Academy of Political and Social Science.

Lee, Sandra Soo-Jin (2015) Direct-to-consumer Personal Genetic Testing. International Encyclopedia for Social and Behavioral Sciences. EdJames D. Wright. 2nd Edition. Oxford: Elsevier. p. 440-45

Shim, Janet K., Sara L. Ackerman, Katherine Weatherford Darling, Robert A. Hiatt, and Sandra Soo-Jin Lee. (2014) Race and ancestry in the age of inclusion: Technique and meaning in post-genomic science. Journal of Health and Social Behavior. Dec;55(4):504-18

Lee, Sandra Soo-Jin. (2014) Race and Racism in a Genomic Age. Theories of Race and Ethnicity.  Karim Murji and John Solomos, Eds. Cambridge University Press.

Lee, Sandra Soo-Jin. (2014) “Empowerment” and the Rendering of Biocapital in Direct-to-Consumer Personal Genomics. In BRCA Cultures: A Transnational Perspective on Breast Cancer Genetic Research and Medical Practices.Eds. Sahra Gibbon, Galen Joseph, Elrini Kampriani, Jessica Mozersky, Andrea zu nieden and Sonja Palfner.  New York: Routledge Press. 
 

Scott, C., & Magnus, D. (2014). Wrongful termination: lessons from the geron clinical trial. Stem Cells Trans Med, 3(12), 1398-1401. doi: 10.5966/sctm.2014-0147

Erickson, J.A., Kuzmich, L., Ormond, K.E., Gordon, E., Cho, M., & Levinson, D.F. (2014). Attitudes towards genetic testing for risk of mood disorders in children among early adopters: a preliminary study. J Genet Couns, 23(4), 566-77. doi: 10.1007/s10897-014-9710-y

Dilzell, K., Kingham, K., Ormond, K.E., & Laudabaum, U. (2014). Evaluating the utilization of educational materials in communicating about Lynch syndrome to at-risk relatives. Fam Cancer, 13(3), 381-9. doi: 10.1007/s10689-014-9720-9.

Dondorp, W., de Wert, G., Bombard, Y., Bianchi, D., Bergmann, C., Borry, P., Chitty, L., Fellmann, F., Forzano, F., Hall, A., Henneman, L., Howard, H., Lucassen, A., Ormond, K.E., et al. (2015). Eur J Hum Genet. doi: 10.1038/ejhg.2015.57.

Kellogg, G., Slattery, L., Hudgins, L., & Ormond, K.E. (2014). Attitudes of mothers of children with Down syndrome towards noninvasive prenatal testing. J Genet Couns, 23(5), 805-13. doi: 10.1007/s10897-014-9694-7.

Dewey, F.A., Grove, M., Pan, C., Goldstein, B.A., Bernstein, J., Chaib, H., Goldfeder, R., Caleshu, C., Kingham, K., Ormond, K.E., et al. (2014). Opportunity and cost of clinical whole genome sequencing. JAMA, 311(10), 1035-45. doi: 10.1001/jama.2014.1717

Jacob KJ, Longstaff H, Scott CT, & Illes J (2015). Focus on people and the science will follow: Motivating forces for professional movement in stem cell research. Stem Cell Reviews and Reports DOI 10.1007/s12015-015-9595-7.

Eaton ML, Kwon BK, Scott CT. (2015) Money and Morals: Stopping clinical trials for financial reasons. Current Topics in Behavioral Neurosciences. Vol. 17: 297-315. Berlin, Germany: Springer-Verlag.

Sharma A and Scott CT. (2015) The ethics of publishing human germline research. Nature Biotechnology (in press).

Sherkow J and Scott CT. (2015) Stem cell patents after the American Invents Act. Cell Stem Cell 16:461-464.

Scott CT. (2015) Backwards by Design: Integrating ethics, law, and social issues into a stem cell science curriculum. Hastings Center Reports May-June, p 26-32.

Scott CT and Senatore V. (2015) Europe’s landmark decisions on stem cell patents: Hope or mere illusion? American Intellectual Property Law Association Quarterly Journal (in press).

Scott CT. (2015) The case for stem cell counselors. Stem Cell Reports 4:1-6.

Scott CT and Magnus D. (2014) Wrongful Termination: Lessons from the Geron stem cell clinical trial. Stem Cells and Translation doi: 10.5966/sctm.2014-0147.

Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, Scott CT et al. (2014) A review of the key issues associated with the commercialization of biobanks. Journal of Law and the Biosciences 1:94-110.

Liu EY and Scott CT. (2014) Great Expectations: Autism Spectrum Disorder and induced pluripotent stem cell technologies. Stem Cell Reviews DOI 10.1007/s12015-014-9497-0.

Chang WC, Bank TC, Scott CT. (2014) Fit to Print: Media accounts of unproven medical treatments across time. American Journal of Bioethics Primary Research DOI:10.1080/21507716.

Scott CT and DeFrancesco L. (2015) Selling Long Life. Nature Biotechnology 33(1):31-40.

Sherkow, JS and Scott CT (2014) Myriad Stands Alone. Nature Biotechnology 32(7):620.

Scott CT, Borgelt EY and Lee SS (2014). The time is ripe for an ethics of entrepreneurship. Nature Biotechnology32(4):316-318.

Shafer A. (2015). Electrocardiogram. Anesthesiology, 122, 206-7.

Shafer A. (2015). The ASA 4 Patient at the VA Hospital. Anesthesiology, 122, 950-1.

Shafer A. (2015). Monday Morning, in The Well-Versed Parent: Poetic Prescriptions for Parenthood. J.E. Hunter, eds. Ashland, OR: Wellstone Press.

Shafer A. (2014). Alternative Medicine by Rafael Campo. Journal Med Hum, 35(4), 451-3.

 

Last revised 6/1/15

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