Publications
SCBE members publish often in leading journals, most recently including Science and Nature. SCBE is also home to the editorial office of the American Journal of Bioethics (AJOB).
Articles
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Megan Allyse
Allyse, M., K. Karkazis, et al. (2012). "Informational risk, institutional review, and autonomy in the proposed changes to the common rule." IRB 34(3): 17-19
Allyse, M., L. Milner, et al. (2012). "The G.I. Genome: Ethical implications of genome sequencing in the military." Nature Reviews Genetics 12(9): 589.
Allyse, M., L. C. Sayres, et al. (2012). "Cell-free fetal DNA testing for fetal aneuploidy and beyond: clinical integration challenges in the US context." Hum Reprod.
Goodspeed, T. A., L. C. Sayres, et al. (2012). "Translating cell-free fetal DNA technology: Structural lessons from non-invasive RhD blood typing. ." Trends in Biotechnology.
Sayres, L. C., M. Allyse, et al. (2012). "Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy." Genome Med 4(6): 49.
Sayres, L. C., M. Allyse, et al. (2012). "In the public interest? The consequences of broad patenting, restrictive licensing, and a monopolized market for cell-free fetal DNA testing." Sci Transl Med 4(144): 144fs123.
Sayres, L. C., M. K. Cho, et al. (2011). "Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation." Prenatal Diagnosis.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.
Emily Borgelt
Borgelt, E., D. Buchman, et al. (2012). Informed Consent and Mental Health Care: Practitioner Perspective and Future Directions. For I know what you're thinking: Brain and mental privacy. I Know What You're Thinking: Brain and Mental Privacy. S. R. S.J.L. Edwards, G. Rees, Oxford University Press.
Borgelt, E. L., D. Z. Buchman, et al. (2012). "In Search of "Anything That Would Help": Parent Perspectives on Emerging Neurotechnologies." J Atten Disord.
Buchman, D. Z., E. L. Borgelt, et al. (2012). "Neurobiological narratives: experiences of mood disorder through the lens of neuroimaging." Sociol Health Illn.
Caulfield, T., E. Borgelt, et al. (2012). "Personal medicine-the new banking crisis." Nature Biotechnology 30(2): 7p.
Mildred Cho
Allyse, M., K. Karkazis, et al. (2012). "Informational risk, institutional review, and autonomy in the proposed changes to the common rule." IRB 34(3): 17-19.
Allyse, M., L. Milner, et al. (2012). "The G.I. Genome: Ethical implications of genome sequencing in the military." Nature Reviews Genetics 12(9): 589.
Allyse, M., L. C. Sayres, et al. (2012). "Cell-free fetal DNA testing for fetal aneuploidy and beyond: clinical integration challenges in the US context." Hum Reprod.
Cho, M. K., S. A. Tishkoff, et al. (2012). "Human evolutionary genomics: ethical and interpretive issues." Trends in Genetics 28(3): 9p.
Cho, M. K. and M. N. Wolpert (2010). "Not Yet in Sequence: Clinical, Technical, Ethical Questions Linger Over Personal Genomics." Modern Healthcare: 24.
Erickson, J. A. and M. K. Cho (2011). "Ethical Considerations and Risks in Psychiatric Genetics: Preliminary Findings of a Study on Psychiatric Genetic Researchers." AJOB Primary Research 2(4): 52-60.
Erickson, J. A. and M. K. Cho "Interest, Rationale, and Potential Clinical Applications of Genetic Testing for Mood Disorders: A Survey of Stakeholders." Journal of Affective Disorders.
Farrelly, E., M. K. Cho, et al. (2012). "Genetic Counseling for Prenatal Testing: Where is the Discussion About Disability?" Journal of Genetic Counseling.
Goodspeed, T. A., L. C. Sayres, et al. (2012). "Translating cell-free fetal DNA technology: Structural lessons from non-invasive RhD blood typing ." Trends in Biotechnology.
Havard, M., M. K. Cho, et al. (2012). "Triggers for research ethics consultation." Sci Transl Med 4(118): 118cm111.
McCormick, J. B., A. M. Boyce, et al. (2012). "Barriers to Considering Ethical and Societal Implications of Research: Perceptions of Biomedical Scientists." AJOB Primary Research 3(40-50).
Ormond, K. E., L. Hudgins, et al. (2011). "Medical and graduate students' attitudes towards personal genomics." Genetics in Medicine 13: 400-408.
Richardson, H. S. and M. K. Cho (2012). "Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account." Genet Med 14(4): 467-472.
Sayres, L. C. and M. K. Cho (2011). "Cell-free fetal nucleic acid testing: A review of the technology and its applications." Obstetrical & Gynecological Survey 66: 431-442.
Sayres, L. C., M. Allyse, et al. (2012). "Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy." Genome Med 4(6): 49.
Sayres, L. C., M. Allyse, et al. (2012). "In the public interest? The consequences of broad patenting, restrictive licensing, and a monopolized market for cell-free fetal DNA testing." Sci Transl Med 4(144): 144fs123.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.
Wolf, S. M., B. N. Crock, et al. (2012). "Managing incidental findings and research results in genomic research involving biobanks and archived data sets." Genet Med 14(4): 361-384.
LaVera Crawley
Crawley, L. M. (2007). "The paradox of race in the Bidil© debate." J Natl Med Assoc 99(7): 821-822.
Crawley, L. M., D. K. Ahn, et al. (2008). "Perceived medical discrimination and cancer screening behaviors of racial and ethnic minority adults." Cancer Epidemiol Biomarkers Prev 17(8): 1937-1944.
Jessica EricksonErickson, J. A. and M. K. Cho "Interest, Rationale, and Potential Clinical Applications of Genetic Testing for Mood Disorders: A Survey of Stakeholders." Journal of Affective Disorders.
Erickson, J. A. and M. K. Cho (2011). "Ethical Considerations and Risks in Psychiatric Genetics: Preliminary Findings of a Study on Psychiatric Genetic Researchers." AJOB Primary Research 2(4): 52-60.
Nanibaa’ GarrisonGarrison, N. (2012). "Cases of How Tribes are Relating to Genetics Research." American Indian & Alaska Native Genetics Resource Center.
Henry T. GreelyAllyse, M., K. Karkazis, et al. (2012). "Informational risk, institutional review, and autonomy in the proposed changes to the common rule." IRB 34(3): 17-19.
Greely, H. T. (2011). The equality of allocation by lot. Lotteries in Public Life: A Reader. Exeter, UK, Imprint Academic.
Greely, H. T. (2011). Human/Nonhuman Chimeras: Assessing the Issues. Oxford Handbook of Animal Ethics. T. B. a. R. G. Frey. Oxford, Oxford University Press.
Greely, H. T. (2011). Of Nails and Hammers: Human Biological Enhancement and American Policy Tools. Human Capacities. J. S. Reuud ter Meulen, Guy Kahane, Wiley Blackwell.
Greely, H. T. (2012). "Designer Eggs and Stem Cell Sausage." GeneWatch 25(1-2).
Greely, H. T. (2012). "Direct brain interventions to "treat" disfavored human behaviors: ethical and social issues." Clin Pharmacol Ther 91(2): 163-165.
Greely, H. T. (2012). Foreword. Neuroimaging in Forensic Psychiatry: From the Clinic to the Courtroom. W.-B. Joseph R. Simpson.
Greely, H. T. (2011). "Get ready for the flood of fetal gene screening." Nature Biotechnology 469: 289-291.
Greely, H. T. (2012). Mindreading, Neuroscience and the Law
A Primer on Law and Neurosciences. A. R. S. Morse, Oxford University Press.
Greely, H. T. (2011). "Readings Minds with Neuroscience - Possibilites for Law." Cortex 27(10): 1254-1255.
Greely, H. T. (2012) Remembering the Sheep that Changed the World. Al Jazeera English Opinion
Greely, H. T. (2012). "What If? The Farther Shores of Neuroethics : Commentary on "Neuroscience May Supersede Ethics and Law"." Sci Eng Ethics.
Greely, H. T. and J. S. King (2010). "The coming revolution in prenatal genetic testing." AAAS Professional Ethics Report 22: 1.
Ormond, K. E., L. Hudgins, et al. (2011). "Medical and graduate students' attitudes towards personal genomics." Genetics in Medicine 13: 400-408.
Rissman, J., H. T. Greely, et al. (2010). "Detecting Individual Memories Through the Neural Decoding of Memory States and Past Experience." Proc. Nat'l Acad Sci.
Tischler, R., L. Hudgins, et al. (2011). "Noninvasive prenatal diagnosis: pregnant women's interest and expected uptake." Prenat Diagn 31(13): 1292-1299.
Molly HavardHavard, M., M. K. Cho, et al. (2012). "Triggers for research ethics consultation." Sci Transl Med 4(118): 118cm111.
Katrina KarkazisJordan-Young, R. and K. Karkazis (2012). The IOC's superwoman complex: how flawed sex-testing discriminates. The Guardian.
Jordan-Young, R. and K. Karkazis (2012). Sex Verification: You Say You're a Woman? That Should Be Enough. New York Times.
Karkazis, K. and R. Jordan-Young (2012). "Rip up new Olympic sex test rules." New Scientists: 26-27.
Karkazis, K., R. Jordan-Young, et al. (2012). "Out of bounds? A critique of the new policies on hyperandrogenism in elite female athletes." Am J Bioeth 12(7): 3-16.
Karkazis, K., S. L. Tobin, et al. (2012). "Informational Risk, Institutional Review, and Autonomy in the Proposed Changes to the Common Rule." IRB: Ethics & Human Research 34(3): 3p.
Miller, K. and K. Karkazis (2012). "Health and Healing in Polygamist Communities in Southern Utah." Journal of Religion and Health.
Moran, M. E. and K. Karkazis (2012). "Developing a multidisciplinary team for disorders of sex development: planning, implementation, and operation tools for care providers." Adv Urol 2012: 604135.
Sandra Soo-Jin Lee
Fullerton, S. M. and S. S. Lee (2011). "Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel." BMC Med Ethics 12: 16.
Karkazis, K., S. L. Tobin, et al. (2012). "Informational Risk, Institutional Review, and Autonomy in the Proposed Changes to the Common Rule." IRB: Ethics & Human Research 34(3): 3p.
Lee, S. S.-J. (2012). Ethical Considerations for Pharmacogenomics: Privacy and Confidentiality. Principle of Pharmacogenetics and Pharmacogenomics. D. F. Russ Altman, David Goldstein. Cambridge, Cambridge University Press.
Lee, S. S.-J. (2012). "The Nature of Race: How Scientists Think and Teach About Human Difference." Ethnic & Racial Studies 35(8): 2p.
Lee, S. S.-J. (2012). "Race, Risk and Recreation in Personal Genetics: The Limits of Play." Medical Anthropology Quarterly.
Lee, S. S.-J. (2012). Waiting on the Promise of Prescribing Precision: Race in the Era of Pharmacogenomics. Genetics and the Unsettled PAst: The Collision between DNA, Race, and History. A. N. Keith Wailoo, Catherine Lee, Mia Bay. New Brunswick, Rutgers University Press.
Soo-Jin Lee, S. (2011). "Making Sense of the Genomic Revolution." American Scientist 99(3): 2p.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.
Vernez, S. (2012). "Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations." American Journal of Bioethics 12(4): 3p.
David MagnusAllyse, M., K. Karkazis, et al. (2012). "Informational risk, institutional review, and autonomy in the proposed changes to the common rule." IRB 34(3): 17-19.
Havard, M., M. K. Cho, et al. (2012). "Triggers for research ethics consultation." Sci Transl Med 4(118): 118cm111.
Magnus, D. (2011). "Beyond the IRB: Local Service Versus Global Oversight." American Journal of Bioethics 11(5): 2p.
Magnus, D. (2012). "Duty-Free: The Non-Obligatory Nature of Preimplantation Genetic Diagnosis." American Journal of Bioethics 12(4): 2p.
Ormond, K. E., L. Hudgins, et al. (2011). "Medical and graduate students' attitudes towards personal genomics." Genetics in Medicine 13: 400-408.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.
Vernez, S. and D. Magnus (2011). "Can the Dead Donor Rule be Resuscitated?" AM J Bioeth 12(4): 1-2.
Lauren MilnerAllyse, M., L. Milner, et al. (2012). "The G.I. Genome: Ethical implications of genome sequencing in the military." Nature Reviews Genetics 12(9): 589.
Kelly E. Ormond
Barragan, D. I., K. E. Ormond, et al. (2011). "Concurrent use of cultural health practices and Western medicine during pregnancy: exploring the Mexican experience in the United States." Journal of Genetic Counseling 20(6): 609-624.
Farrelly, A., M. K. Cho, et al. (2012). "Discussions about Disability in Prenatal Genetic Counseling: Are we providing informed consent prior to genetic testing?" J Genetic Counseling.
Farrelly, E., M. K. Cho, et al. (2012). "Genetic Counseling for Prenatal Testing: Where is the Discussion About Disability?" Journal of Genetic Counseling.
Ormond, K. E., L. Hudgins, et al. (2011). "Medical and graduate students' attitudes towards personal genomics." Genetics in Medicine 13: 400-408.
Tischler, R., L. Hudgins, et al. (2011). "Noninvasive prenatal diagnosis: pregnant women's interest and expected uptake." Prenat Diagn 31(13): 1292-1299.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.Mary Rorty
Rorty, M. (2012). "ASBH Core Competencies for Healthcare Ethics Consultation."
Rorty, M. (2012). Ethics In and For the Organization. Guidance for Healthcare Ethics Committees. T. S. D.M. Hester, Cambridge University Press.
Rorty, M. and A. Silvers (2012). Alt in Amerika: zuer bioethischen Debatte in den USA. Pro-Age oder Anti-Aging? M. S. S. Schicktanz, Campus Verlag.
Lauren SayresGoodspeed, T. A., L. C. Sayres, et al. (2012). "Translating cell-free fetal DNA technology: Structural lessons from non-invasive RhD blood typing. ." Trends in Biotechnology.
Magnus, D. (2012). "Duty-Free: The Non-Obligatory Nature of Preimplantation Genetic Diagnosis." American Journal of Bioethics 12(4): 2p.
Sayres, L. C., M. Allyse, et al. (2012). "Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy." Genome Med 4(6): 49.
Sayres, L. C., M. Allyse, et al. (2012). "In the public interest? The consequences of broad patenting, restrictive licensing, and a monopolized market for cell-free fetal DNA testing." Sci Transl Med 4(144): 144fs123.
Sayres, L. C. and M. K. Cho (2011). "Cell-free fetal nucleic acid testing: A review of the technology and its applications." Obstetrical & Gynecological Survey 66: 431-442.
Sayres, L. C., M. K. Cho, et al. (2011). "Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation." Prenatal Diagnosis.
Christopher Scott
Caulfield, T., E. Borgelt, et al. (2012). "Personal medicine-the new banking crisis." Nature Biotechnology 30(2): 7p.
Derouen, M. C., J. B. McCormick, et al. (2012). "The Race Is On: Human Embryonic Stem Cell Research Goes Global." Stem Cell Rev.
Huggett, B. (2012). "Geron's quixotic fate." Nature Biotechnology 30(6): 1p.
Owen-Smith, J., C. T. Scott, et al. (2012). "Democracy is working." J Policy Anal Manage 31(3): 726-728.
Owen-Smith, J., C. T. Scott, et al. (2012). "Expand and regularize federal funding for human pluripotent stem cell research." J Policy Anal Manage 31(3): 714-722.
Scott, C. T. and V. Bethencourt (2012). "Going Viral: Affymetrix Case Study." Nature Biotechnology 29: 975.
Audrey Shafer
Seiden, S. C. and A. Shafer (2011). Anesthesia and Analgesia Clinical ethics in anesthesiology: A case-based textbook. S. J. Gail A. Van Norman, S.H. Rosenbaum, S.K. Palmer. 113: 1286-1287.
Shafer, A. (2012). "Anesthesia Checklist." Anesthesiology 116(2): 477-478.
Shafer, A. (2012). In the Emergency Room with My Mother, Again. Mission at Tenth: The Double Helix Issue, California Institute of Integral Studies. 3: 38.
Shafer, R. and A. Shafer (2011). "Deborah Butterfield's Horses: Commentary." Academic Medicine (Medicine and the Arts) 86: 1129.
Sally Tobin
Allyse, M., K. Karkazis, et al. (2012). "Informational risk, institutional review, and autonomy in the proposed changes to the common rule." IRB 34(3): 17-19.
Tobin, S. L., M. K. Cho, et al. (2012). "Customers or research participants?: Guidance for research practices in commercialization of personal genomics." Genet Med.
Simone Vernez
Vernez, S. (2012). "Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations." American Journal of Bioethics 12(4): 3p.
Maya Wolpert
Cho, M. K. and M. N. Wolpert (2010). "Not Yet in Sequence: Clinical, Technical, Ethical Questions Linger Over Personal Genomics." Modern Healthcare: 24.
Larry Zaroff
Zaroff, L. (2012). "No Bag Lady." Hektoen International: A Journal of Medical Humanities 4(1).
Revised as of Fall 2012.
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