Stanford Center for
Biomedical Ethics–

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SCBE members publish often in leading journals,  most recently including Science and Nature.   SCBE is also home to the editorial office of the American Journal of Bioethics (AJOB).

Articles

• Karkazis, K. and E. Feder. 2008. “Naming the Problem: Disorders and their Meanings,” The Lancet 372(9655): 2016-17.
• Grunwell, J., Illes, J., and K. Karkazis. 2008. “Advancing Neuroregenerative Medicine: A Call for Expanded Collaboration between Scientists and Ethicists,” Neuroethics.
• Feder, E., and K. Karkazis. 2008. “What’s in a Name?: The Controversy over Disorders of Sex Development,” Hastings Center Report, 38(5): 33-36.
• Chalfin, M., Murphy, E., and K. Karkazis. 2008. “Women’s Neuroethics? Why Sex Matters for Neuroethics,” American Journal of Bioethics 8(1):1-2.
• Karkazis, K. 2008. “Disorders of Sex Development: Improving Care for Affected Persons and their Families,” American Journal of Psychiatry 165(2): 265-266.
  
• Henry T. Greely, "Who Knows What Evil Lurks in the Hearts of Men?": Behavioral Genomics, Neuroscience, Criminal Law, and the Search for Hidden Knowledge, in THE IMPACT OF BEHAVIORAL SCIENCES ON THE CRIMINAL LAW (ed. Nita Farahany, Oxford Univ. Press, forthcoming March 2009)
• P Duggan, AW Siegel, DM Blass, H Bok, JT Coyle, R Faden, J Finkel, JD Gearhart, HT Greely, A Hillis, A Hoke, R Johnson, M Johnston, J Kahn, D Kerr, P King, J Kurtzberg, SM Liao, JW McDobnald, G McKhann, KB Nelson, M Rao, A Regenberg,, K Smith, D Solter, H Song, J Sugarman, RJ Taystman, Avescovi, W Young, DJH Mathews; Unintended Changes in Cognition, Mood, and Behavior Arising from Cell-Based Interventions for Neurological Conditions: Ethical Challenges, AJOB: NEUROSCIENCE (forthcoming 2009)
• Henry T. Greely, Neuroscience-Based Lie Detection: The Need for Regulation, Occasional Papers, American Academy of Arts and Sciences (forthcoming 2009)
  2008
  
• Henry T. Greely, Within You, Without You, in IMAGINING SCIENCE (ed. T. Caulfield and S. Caulfield, Alberta University Press; 2008)
• Henry T. Greely, Genetic Genealogy: Genetics Meets the Marketplace, in REVISITING RACE IN A GENOMIC AGE 271-299 (eds. Barbara A. Koenig, Sandra Soo-Jin Lee, and Sarah Richardson; Rutgers University Press, 2008)
  
• Henry Greely, Barbara Sahakian, John Harris, Ronald Kessler, Michael Gazzaniga, Philip Campbell, Martha Farah; Towards Responsible Use of Cognitive-Enhancing Drugs by the Healthy, NATURE 456:702-05 (Dec. 11, 2008)
  
• Mildred K. Cho, Sara L. Tobin, Henry T. Greely, Jennifer McCormick, Angie Boyce and David Magnus, Research Ethics Consultation: The Stanford Experience, IRB 30(6):1-6 (Nov.-Dec. 2008)
  
• Henry T. Greely, Neuroscience and Criminal Justice: Not Responsibility but Treatment, U. KAN. L. REV. 56:1103-1138 (2008)
• Henry T. Greely, Remarks on Human Biological Enhancement, U. KAN. L. REV. 56:1139-1157 (2008)
• David R. Karp, Shelley Carlin, Robert Cook-Deegan, Daniel E. Ford, Gail Geller, David N. Glass, Hank Greely, Joel Guthridge, Jeffrey Kahn, Richard Kaslow, Cheryl Kraft, Kathleen MacQueen, Bradley Malin, Richard H. Scheuerman and Jeremy Sugarman, Ethical and Practical Problems Associated with Aggregating Databases, Pub. Lib. Of Science:Med 5(9), e 190, doi:10.1371/journal.pmed.0050190 (Sept. 23 2008)
• Henry Greely, The Genetics of Fear, DEMOCRACY 55-60 (Summer 2008).
• Sandra Soo-Jin Lee, Joanna Mountain, Barbara Koenig, Russ Altman, Melissa Brown, Albert Camarllo, Luca Cavalli-Sforza, Mildred Cho, Jennifer Eberhardt, Marcus Feldman, Richard Ford, Henry Greely, Roy King, Hazel Markus, Debra Satz, Matthew Snipp, Claude Steele, and Peter Underhill, The Ethics of Characterizing Difference: Principles on Using Racial Categories in Human Genetics, GENOME BIOLOGY 9(7):404 (July 2008)
• D.J.H. Mathews, PhD , J. Sugarman, MD. H. Bok, PhD, D.M. Blass, MD, J.T. Coyle, MD, P. Duggan, AB. J. Finkel, BA , H.T. Greely, JD,A. Hillis, MD, MA, A. Hoke, MD, PhD, R. Johnson, MD, M. Johnston, MD, J. Kahn, PhD, D. Kerr, MD, PhD, J. Kurtzberg, MD ,S.M. Liao, DPhil, J.W. McDonald, MD,, PhD, G. McKhann, MD, K.B. Nelson, MD, M. Rao, MD, PhD ,A. Regenberg, MBe, A.W. Siegel, JD, PhD, K. Smith, PhD, D. Solter, MD, PhD, H. Song, PhD, A. Vescovi, PhD, W. Young, MD, PhD, J.D. Gearhart, PhD, R. Faden, PhD, Cell-Based Interventions for Neurologic Conditions: Ethical Challenges for Early Human Trials, NEUROLOGY 71: (July 22, 2008)
• Mildred K. Cho, Sara L. Tobin, Henry T. Greely, Jennifer McCormick, Angie Boyce and David Magnus, Strangers at the Benchside: Research Ethics Consultation, AMERICAN JOURNAL OF BIOETHICS 8(3): 4-13 (March 2008)
  2007
• Henry T. Greely, On Neuroethics, (editorial), SCIENCE 318:533 (Oct. 26, 2007)
• National Cancer Policy Forum, Institute of Medicine, CANCER-RELATED GENETIC TESTING AND COUNSELING: WORKSHOP PROCEEDINGS, at 103-116 (National Academies Press, Washington, D.C. 2007)
• Henry T. Greely and Judy Illes, Neuroscience-Based Lie Detection: The Urgent Need for Regulation, AM. J. LAW & MED. 33:377-431 (Sept. 2007)
• Henry T. Greely, The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks, ANNUAL REVIEW OF GENOMICS AND HUMAN GENETICS, 8:343-364 (2007)
• Henry T. Greely, Mildred K. Cho, Linda F. Hogle, Debra M. Satz, Thinking About the Human Neuron Mouse, AMERICAN JOURNAL OF BIOETHICS: NEUROSCIENCE 7:(5) 25-40 (May/June 2007)
• Henry T. Greely, Mildred K. Cho, Linda F. Hogle, Debra M. Satz, Response to Peer Commentaries, AMERICAN JOURNAL OF BIOETHICS: NEUROSCIENCE 7:(5) W4-W6 (May/June 2007)
• Turhan Canli, Susan Brandon, William Casebeer, Philip J. Crowley, Don DuRousseau, Henry T. Greely, Alvaro Pascual-Leone, Neuroethics and National Security, AMERICAN JOURNAL OF BIOETHICS: NEUROSCIENCE 7:(5) 3-13 (May/June 2007)
• Turhan Canli, Susan Brandon, William Casebeer, Philip J. Crowley, Don DuRousseau, Henry T. Greely, Alvaro Pascual-Leone, Response to Peer Commentaries, AMERICAN JOURNAL OF BIOETHICS: NEUROSCIENCE 7:(5) W1-W3 (May/June 2007)
• Henry T. Greely, Law and Neuroscience, ENCYCLOPEDIA OF LAW AND SOCIETY (July 2007, ed. David S. Clark, Sage Publications: Thousand Oaks)
  Michael T. Longaker, Laurence C. Baker, Henry T. Greely, Proposition 71 and the Creation of a California Institute for Regenerative Medicine: Assessing the Return on this Investment, NAT. REV. BIOTECH. 25:513-21 (May 2007)
• Henry T. Greely, Electronic Transfer of Medical Records in Clinical Care and Research: An Irresistible Force Meets a Moveable Object at 35-50, in BIOLOGICAL MATERIAL AND ELECTRONIC DATA: MUCH ADO ABOUT NOTHING? (ed. Bartha M. Knoppers and Christian Hervé, Bordeaux: Les Études Hospitalières,2006).
  Henry T. Greely, The Social Consequences of Advances in Neuroscience: Legal Problems; Legal Perspectives, at 245-263 In: NEUROETHICS: DEFINING THE ISSUES IN THEORY, PRACTICE AND POLICY (Judy Illes, ed., Oxford University Press, 2006)
• Henry T. Greely, Regulating Human Biological Enhancements: Questionable Justifications and International Complications, THE MIND, THE BODY, AND THE LAW: UNIVERSITY OF TECHNOLOGY, SYDNEY, LAW REVIEW 7:87-110 (2005)/SANTA CLARA JOURNAL OF INTERNATIONAL LAW 4:87-110 (2006) (joint issue)
• Henry T. Greely, Man and Superman, THE NEW SCIENTIST 19 (Aug. 5, 2006)
• Henry T. Greely, Knowing Sin: Making Sure Good Science Doesn't Go Bad, CEREBRUM (June 2006).
• Henry T. Greely, Some Thoughts on Academic Health Law, 41 WAKE FOR. L. REV. 391-409 (Summer 2006)
• Henry T. Greely, Neuroethics and ELSI: Similarities and Differences, 7 MINN. J. L. SCI. & TECH. 599-637 (May 2006)
• Henry T. Greely, Fifteen Years Later: Another Look at Health Care in America, 15 STAN. L. & POL. REV. 1 (Spring 2006)
  Henry T. Greely, Daniel P. Riordan, Nanibaa' A. Garrison, Joanna L. Mountain, Family Ties: The Use of DNA Offender Databases to Catch Offenders' Kin, JOURNAL OF LAW, MEDICINE & ETHICS, 34:248-262 (Summer 2006)
• Henry T. Greely, Stanford Symposium on Preimplantation Genetic Diagnosis: An Introduction - and Some Conclusions, 85 FERTILITY & STERILITY 1631-32 (June 2006) (and edited the four article symposium)
• Kenneth Taymor, Christopher Thomas Scott, Henry T. Greely, The Paths Around Stem Cell Intellectual Property, NATURE BIOTECHNOLOGY 24:411-413 (April 2006)
  Henry T. Greely, Moving Human Embryonic Stem Cells from Legislature to Lab: Remaining Legal and Ethical Questions. PLoS Med 3(5): e143 (May 2006)
• Weil J, Ormond K, Peters J, Peters K, Biesecker BB, LeRoy B. (2006). “The relationship of nondirectiveness to genetic counseling: Report of a workshop at the 2003 NSGC Annual Educational Conference.” J Genet Counseling. 15(2):85-93.
• Hiraki S, Ormond KE, Kim K, Ross LF (2006). “The Attitudes of Genetic Counselors towards Expanding Newborn Screening and Offering Predictive Genetic Testing to Children.” Am J Med Genet 140A 2312-2319.
• Ormond KE, Iris M, Banuvar, S, Minogue J, Annas GJ, Elias S. (2007) “What do patients want: Informed consent models for genetic carrier testing”. J Genet Counseling 16(4):539-50. (Article selected for CEU offering in this journal volume)
• Munger K, Gill CJ, Ormond KE, Kirschner K. (2007) “The Next Exclusion Debate: Assessing Technology, Ethics, and Intellectual Disability After the Human Genome Project.” Ment Retard Dev Disabil Res Rev. 13(2):121-8.
• Ormond KE. (2008) “Medical Ethics for the Genome World: A paper from the 2007 William Beaumont Hospital Symposium on Molecular Pathology” J Molecular Diagnostics 10(5): 377-82. (Epub Aug 7) http://jmd.amjpathol.org/cgi/reprint/10/5/377
• Ormond KE, Banuvar S, Iris M, Daly A, Elias S. (2008) “Information preferences of high literacy pregnant women regarding informed consent models for genetic carrier screening.” Patient Educ Couns doi:10.1016/j.pec.2008.09.020 (Epub Nov 13, 2008).
• Ormond K, Ross L (2006) “Ethical Issues related to Prenatal Genetic Diagnosis” In: Individuals, Families and the New Genetics (Eds: SL Feetham, SM Miller, SH McDaniel, JS Rolland). Norton Publishers.
• Cho, MK, McGee, G and Magnus, D   Lessons of the stem cell scandal.  Science 2006 311:614-5.
• Sankar, P, Cho, M, Wolpe, PR & Schairer, C  What’s in a cause?  Exploring the relationship between genetic etiology and felt stigma.  Genetics in Medicine 20068:33-42.
• Merz, JF and Cho, MK  What are gene patents and why are people worried about them?  Community Genetics 20058:203-208.
• Crawley, LM. Racial, cultural, and ethnic factors influencing end-of-life care. Journal of Palliative Medicine 2005; 8(Supp 1): s58-69.
• Crawley, LM. Chapter 22. “Care of the dying patient.” in King et al. Medical Management of Vulnerable & Underserved Patients: Principles, Practice, & Populations, 1ed. McGraw-Hill Medical Publishing Division; 2006.
• Grainger-Monsen, M. and Karetsky, K.  The Mind in the Movies: A Neuroethical Analysis of the Portrayal of the Mind in Popular Media, in Neuroethics: Defining the Issues in Research, Practice and Policy.  Oxford University Press.
• Illes, J., Blakemore, C., Hansson, M., Hensch, T., Leshner, A., Maestre, G., Magistretti, P., Strata, P., Neuroethics: International perspectives on engaging the public. Nature Reviews Neuroscience, 2005, 6, 977-982.
• Illes, J. Viewpoint: On the contents of Pandora's Box of incidental findings in brain imaging research. Nature, Clinical Practice Neurology. 2(2):60-61.
• Illes, J., Kirschen, M.P., Edwards, E., Stanford, L.R., Bandettini, P., Cho, M.K., Michael, D.B., Ford, P.J., Glover, G.H., Kulynych, J., Macklin R., Wolf, S.M., and the Working Group on Incidental Findings, Incidental findings in brain imaging research. Science. 2006.311:783-784.
• Illes, J. (Ed.) Neuroethics: Defining the Issues in Theory, Practice and Policy, Oxford University Press, Oxford, UK, 2006.
• Kirschen, M.P., Jaworska, A., Illes, J. Participant expectations in neuroimaging research. Journal of Magnetic Resonance Imaging. 23(2):205-209.
• Illes, J., Raffin T.A. No child left without a brain scan? Toward a pediatric neuroethics. Cerebrum, The Dana Press, 2005, 7(3):33-46. Also to be presented at the American Education Research Association, San Francisco, April 2006
• Lee, Sandra Soo-Jin. “Racializing Drug Design”: Pharmacogenomics and Implications for Health Disparities American Journal of Public Health. Vol. 95(12): 2133-2138. December 2005.
• Lee, Sandra Soo-Jin, Mountain, Joanna, Koenig, Barbara A. “The Meanings of Race in the New Genomics.” Henderson, Gail E., Sue E, Estroff, Larry R. Churchill, Nancy M.P. King, Jonathan Oberlander, and Ronald P. Strauss (eds), The Social Contributions to Health, Difference and Inequality: The Social Medicine Reader Second Edition, Volume II.  Duke University Press. 2005.
• Lee, Sandra Soo-Jin. Invited Review: “Personalized Medicine and Pharmacogenomics: Ethical and Social Challenges.” Personalized Medicine. 2(1): 29-35. 2005
• Magnus, D and Cho, MK  A commentary on oocyte donation for stem cell research in South Korea.  Am J Bioethic 2006 6:W23-4.
• Racine, Eric, Isabelle Gareau, Hubert Doucet, Danielle Laudy, Guy Jobin, and Pamela Schraedley Desmond. Hyped biomedical science or uncritical reporting? Press coverage of genomics (1992-2001) in Québec. Social Science & Medicine, 2006. 62(5). 1278-1290.
• Racine, Eric and Kevin Hayes. Surveying needs and goals for a clinical ethics service in a community healthcare service center, Journal of Medical Ethics (in press).
• Racine, Eric. Multidirectional communication in neuroethics. Canadian Psychiatry Aujourd’hui 2005, 1(5): 17.
• Racine, Eric. Where are we going with direct-to-consumer advertising of healthcare products? Canadian Psychiatry Aujourd’hui, 2006, 1(1).
• Sankar, P, Cho, MK and Mountain, J. (in press)  Race and ethnicity in genetic research.  Am J Med Genet.
• Cho, MK (2006) Racial and ethnic categories in biomedical research: There is no baby in the bathwater.  Am J Law Medicine Ethics Fall:497-499.
• Sankar, P, Wolpe, PR, Jones, NL and Cho, M (2006).  How do women decide?  Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.  Community Genetics 9:78-86.
• Henry T. Greely, The Social Consequences of Advances in Neuroscience:  Legal Problems; Legal Perspectives, at 245-263 In: Neuroethics: Defining the Issues in Theory, Practice and Policy (Judy Illes, ed., Oxford University Press, 2006).
• Henry T. Greely, Regulating Human Biological Enhancements:  Questionable Justifications and International Complications, The Mind, The Body, and the Law: University of Technology, Sydney, Law Review 7:87-110 (2005)/Santa Clara Journal of International Law 4:87-110  (2006) (joint issue).
• Henry T. Greely, Knowing Sin:  Making Sure Good Science Doesn't Go Bad, Cerebrum (June 2006)..
• Henry T. Greely,Some Thoughts on Academic Health Law, 41 Wake For. L. Rev. 391-409 (Summer 2006).
• Henry T. Greely, Neuroethics and ELSI:  Similarities and Differences, 7 Minn. J. L. Sci. & Tech. 599-637 (May 2006).
• Henry T. Greely,Fifteen Years Later: Another Look at Health Care in America, 15 Stan. L. & Pol. Rev. 1 (Spring 2006).
• Henry T. Greely, Daniel P. Riordan, Nanibaa' A. Garrison, Joanna L. Mountain,Family Ties:  The Use of DNA Offender Databases to Catch Offenders' Kin, Journal of Law, Medicine & Ethics, 34:248-262  (Summer 2006).
• Henry T. Greely,Stanford Symposium on Preimplantation Genetic Diagnosis:  An Introduction - and Some Conclusions, 85 Fertility & Sterility 1631-32 (June 2006) (and edited the four article symposium).
• Kenneth Taymor, Christopher Thomas Scott, Henry T. Greely,The Paths Around Stem Cell Intellectual Property, Nature Biotechnology 24:411-413  (April 2006).
• Henry T. Greely, Moving Human Embryonic Stem Cells from Legislature to Lab: Remaining Legal and Ethical Questions. PLoS Med 3(5): e143 (May 2006).
• Henry T. Greely,Population Participation and Other Factors that Impact the Compilation and the Utility of Resulting Databases, 66 La. L. Rev. 79-90 (Dec. 2005).
• Henry T. Greely,Banning Genetic Discrimination, New England. Journal of Medicine. 353:865-67 (Sept. 1, 2005).
• Lee, Sandra Soo-Jin.  2006   The Ethical Implications of Stratifying by Race in Pharmacogenomics. Clinical Therapeutics and Pharmacology. Volume 81, Issue 1, pp122-125.
• Lee, Sandra Soo-Jin. 2006 The Politics of Hope: Dreaming in a Genomic Age. Science.  Invited Review.  Vol. 313: 1888-1889.  September 29.
• Lee, Sandra Soo-Jin. 2006  Identifying “Race” in the New Genetics: Bio-Banks of a Kind. Patterns of Prejudice. Editor: Sander L. Gilman.  Vol. 40, Nos 4, 5: 443-460.
• Zaroff, Lawrence I.  A Chronicle of Descent, and a Stark Reflection.  The New York Times November 14, 2006.

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