The Implications of Individualizing Medicine Through Genomics
Stanford University Program in Genomics, Ethics, and Society
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Major Conference:
Individual Genetic Variation: Implications of the Coming Transformation of Medicine Saturday, October 17, 1998 Kresge Auditorium, Stanford University |
Program Description
As we understand more about the medical implications of individual genetic variation and as sequencing genes becomes less expensive, medicine and public health will be transformed: It will become possible to use information about specific genetic variations to tailor personalized interventions. These genetic variations may be that of a pathogen, tumor, genetic disease, or healthy human tissue. The implications may be in prevention, treatment, diagnosis, or prognosis. In all of these realms, rapid technological advances have the potential to make large-scale genetic testing and screening programs possible, driving a change in medicine and public health based on targeting practice to individuals' genetic variations.
In this day-long symposium, the Stanford Program in Genomics, Ethics, and Society (PGES) presented its report on the ethical, legal, and social implications arising from health promotion, disease prevention, and disease treatment based on individual genetic information. Leaders in the fields of genetics, medicine, public health, law, ethics, and biotechnology commented on the PGES report. Conference speakers reflected on future transformations in health care brought about by the genomics revolution.
What's Next?
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If you would like to purchase a set of audiotapes of this conference, please send a check for $25, made payable to the Stanford Center for Biomedical Ethics . Include your name, complete mailing address, telephone number, and email address.
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The Stanford Cable Channel (Channel 51) is videotaping this conference for broadcast. If you would like to order copies of the videotapes, please see their Web site or call (650) 723-5100.
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Please watch this Web site for future information about the publication of the report from the Stanford Program in Genomics, Ethics & Society on Individualizing Medicine Through Genomics.
Conference Program
8:30 - 9:00 a.m.
Registration
9:00 - 9:10
Welcome and Introductory Remarks
Thomas A. Raffin, M.D., Professor and Chief, Division of Pulmonary and Critical Care Medicine, Stanford Health Services; Co-Director, Stanford Center for Biomedical Ethics; Co-Director, Stanford Program in Genomics, Ethics, and Society
9:10 - 9:30
Individualizing Medicine Through Genomics: A Report From
the Stanford Program in Genomics, Ethics, and Society *
Henry T. Greely, J.D. , Professor of Law, Stanford University; Co-Director, Stanford Program in Genomics, Ethics, and Society
* The PGES Report does not necessarily represent the views of SmithKline
Beecham Corp., the U.S. Department of Energy, or other funders, nor
has it been reviewed or approved prior to presentation at this conference..
9:30 - 10:00
Technological Advances in Genomic Analysis
Anthony V. Carrano, Ph.D., Director, Biology and Biotechnology Research Program , Lawrence Livermore National Laboratory
10:00 - 10:40
Individual Genetic Variation: Imagining the Future of Medicine
and Public Health
Francis S. Collins, M.D., Ph.D., Director, National Human Genome Research Institute
10:40 - 10:55
Break
10:55 - 11:35
Problems in Research Ethics: How Do We Get From Here to There?
Speaker:
R. Alta Charo, J.D., Professor of Law and Medical Ethics, University of Wisconsin;
Member, National
Bioethics Advisory Commission ; Fellow, Stanford Program in Genomics,
Ethics, and Society
Commentator:
Norman Fost, M.D., M.P.H., Professor, Department of Pediatrics, and Director,
Program in Medical Ethics, University of Wisconsin
11:35-12:15
Targeted Prevention: A New Paradigm in Public Health Practice
Speaker:
Laura McConnell, M.P.H., Associate Director, Stanford Program in Genomics,
Ethics, and Society
Commentator:
Muin Khoury, M.D., Ph.D., Acting Director, Office
of Genetics and Disease Prevention , Centers for Disease Control and Prevention
12:15-1:15 p.m.
Lunch
1:15-1:55
Ethical Issues in Genetically-Tailored Clinical Care
Speaker:
Henry T. Greely, J.D.
Commentator:
Laurie Zoloth-Dorfman, Ph.D., Associate Professor and Director of Jewish Studies,
San Francisco State University
1:55-2:35
The Exponential Growth of Genetic Information: Challenges
to Privacy
Speaker:
Rachel Cohon, Ph.D., Assistant Professor of Philosophy, Stanford University;
Fellow, Stanford Program in Genomics, Ethics, and Society
Commentator:
Thomas
Rindfleisch, M.D. , Director, Lane Medical Library and Senior
Research Scientist, Departments of Medicine and Computer Science,
Stanford University
2:35-3:15
Does 'Race' Have Meaning in the New Genetic Medicine?
Speaker:
Barbara A. Koenig, Ph.D., Executive Director and Senior Research Scholar, Stanford
Center for Biomedical Ethics; Co-Director, Stanford Program in Genomics,
Ethics, and Society
Commentator:
Pilar Ossorio, Ph.D., J.D., Director, Genetics Section, Institute
for Ethics , American Medical Association
3:15 - 3:30
Break
3:30-4:20
Capitalizing on Genetic Variation: Dilemmas of Commercialization
Speaker:
Margaret Eaton, Pharm.D., J.D., formerly Clinical Risk Management and Legal
Counsel, Stanford University Medical Center; Fellow, Stanford Program in
Genomics, Ethics, and Society
Commentators:
Rebecca Eisenberg, J.D., Professor of Law, University of Michigan Law School
Robert Cook-Deegan, M.D., Director, National Cancer Policy Board , Institute of Medicine & Commission on Life Sciences, National Academy of Sciences; Author, The Gene Wars: Science, Politics and the Human Genome
4:20 - 5:10
Closing Panel - Ethical, Legal, and Social Implications of
the Coming Genomic Era
Moderator:
Paul
Berg, Ph.D. , Robert W. and Vivian K. Cahill Professor in Cancer
Research and Biochemistry; Director, Beckman Center for Molecular and
Genetic Medicine, Stanford University
Panelists:
- R. Alta Charo, J.D.
- Francis S. Collins, M.D., Ph.D.
- Robert Cook-Deegan, M.D
Additional Information
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PGES gratefully acknowledges funding for this symposium by the U.S. Department of Energy Human Genome Program and the SmithKline Beecham Corporation .
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The Stanford University School of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to sponsor continuing medical education for physicians. The Stanford University School of Medicine designated this CONTINUING MEDICAL EDUCATION activity (Course #78217) for up to 6.5 credit hours in Category 1 of the Physician's Recognition Award of the American Medical Association. CME Category 1 credit is transferable as CEU's for nurses in the State of California.
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This conference was approved as a ONE CREDIT, SATISFACTORY / NO CREDIT COURSE (Med #253) for all Stanford students (undergraduate, graduate, medical).
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