Stanford Center for
Biomedical Ethics–

Genetic Testing for Breast Cancer Susceptibility

Major Conference:

Genetic Testing for Breast Cancer Susceptibility:
The Science, The Ethics, The Future

November 23, 1996 San Francisco, California

Program

8:30-8:35

Welcome

Professor and Chief, Division of Pulmonary and Critical Care Medicine; Co-Director, Stanford Center for Biomedical Ethics; Co-Director, Stanford Program in Genomics, Ethics, and Society

Dean, Stanford University School of Medicine

8:35-8:40
Introductory Remarks

Chief Executive, SmithKline Beecham Corporation

8:40-9:10
Recommendations of the Stanford Program in Genomics, Ethics, and Society

Professor of Law, Stanford University; Chair, PGES Working Group

9:10-9:40
The Genetics of Breast Cancer

American Cancer Society Professor of Genetics and Medicine, University of Washington, Seattle

9:40-10:10
The Role of the Biotechnology Industry

Executive Vice President of Research, Myriad Genetic Laboratories, Inc.

10:10-10:30
Break

10:30-11:00
Ethical Dilemmas in Genetic Testing and Counseling

Director, Center for Bioethics; Trustee Professor, University of Pennsylvania

11:00-11:30
Legal Issues in the Regulation and Use of Genetic Testing

Professor of Law, Chicago-Kent College of Law; Research Fellow, American Bar Foundation; Senior Scholar, Center for Clinical Medical Ethics, University of Chicago

11:30-12:00
Social and Cultural Realities of Predicting Breast Cancer Risk

Professor of Anthropology, Department of Social Studies of Medicine and Department of Anthropology, McGill University

12:00-1:30
Banquet Lunch and Keynote Address

Director, National Center for Human Genome Research

1:30-2:45
Panel #1: Comparing National Perspectives

Genetic testing for breast cancer from the perspective of a number of countries and cultures.

Professor of Genetics and Pediatrics, Stanford University; Member, PGES Working Group

Ruth Chadwick, Ph.D., LL.B.

Head, Centre for Professional Ethics; Professor of Moral Philosophy, University of Central Lancashire

Neil A. Holtzman, M.D., M.P.H.

Director, Genetic & Public Policy Studies, The Johns Hopkins Medical Institutions; Chair, NIH-DOE ELSI Working Group Task Force on Genetic Testing

Bartha Maria Knoppers, LL.D.

Universite de Montreal, C.R.D.P.

Darryl Macer, Ph.D.

Institute of Biological Sciences; University of Tsukuba, Japan

2:45-3:00
Break

3:00-4:15
Panel #2: The Voices of People at Risk

First-hand accounts and research reports on the impact of genetic testing for breast cancer.

Assistant Professor of Surgery, Stanford University; Member, PGES Working Group

Barbara A. Brenner, J.D.

Executive Director, Breast Cancer Action , San Francisco

June Peters, M.S.

Genetic Counselor, Medical Genetics Branch of the National Center for Human Genome Research of the National Institutes of Health

Nancy Press, Ph.D.

Associate Research Anthropologist, Department of Psychiatry and Biobehavioral Sciences, UCLA School of Medicine

David M. Spiegel, M.D.

Professor of Psychiatry & Behavioral Sciences, Stanford University School of Medicine

4:15-4:30
Break

4:30-5:45
Panel #3: Where Do We Go From Here?

The future of genetic testing for breast cancer.

Robert W. and Vivian K. Cahill Professor in Cancer Research and Biochemistry; Director, Beckman Center for Molecular and Genetic Medicine, Stanford University; Member, PGES Working Group

Francis S. Collins, M.D., Ph.D.

Director, National Center for Human Genome Research

Troy Duster, Ph.D.

Director, Institute for the Study of Social Change, University of California, Berkeley

Eric T. Juengst, Ph.D.

Associate Professor of Biomedical Ethics, Center for Biomedical Ethics , Case Western Reserve University

Mary Jo Ellis Kahn, M.S.N., R.N.

Virginia Breast Cancer Foundation; National Breast Cancer Coalition

Karen M. Rothenberg, J.D., M.P.A.

Marjorie Cook Professor of Law and Director, Law and Health Care Program, University of Maryland School of Law

5:45-6:00
Closing Comments

Executive Director and Senior Research Scholar, Stanford Center for Biomedical Ethics; Co-Director, Stanford Program in Genomics, Ethics, and Society

6:00
Reception

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